Tuesday, January 5, 2010

Happy Heart Anniversary

Today is the 4-year anniversary of Gabby's open heart surgery! Wow! The time has just flown by. It marks the day that they fixed her heart, but we almost lost her. ECMO was terrifying. But we got through it as a family, and it made us stronger.

Gabby is doing very well. As I mentioned in a previous posting, she gets to go an entire year between cardiology visits. She has good energy. In fact, at times it seems like she's constantly moving. She's smart, loving, and she can have quite the temper at times. She can also be pretty sneaky when she wants to be. In other words, a pretty normal kid except for the scars. At least that's how we try to treat her.

She still has problems with her gross motor milestones. I mean, she can walk and run, and she can jump now, but she's not where other 4 year-olds are. That's why she gets weekly physical therapy through the school district. She's also still really short. She's still just below the 3rd percentile for height. However, she comes by it honestly considering that most of the folks on both sides of her family aren't terribly tall.

It's a feeling of accomplishment to have a child (and family) who have been through what she went through (and we went through together) and come out the other side doing as well as we are. According to her cardiologist, she's an ECMO superstar. That's some of the best news I've ever had. It shows that a child can go through all that she did and do well. Her outcome is exactly what the doctors and nurses who work with these types of problems strive for. While we have more surgery ahead of us during "late childhood" (age 7 to 10), we've been through the worst of it. We hope. If you know a family with a child with a CHD, let them know that it really CAN turn out ok on the other side of the surgery.